Community support can be an important part of understanding and managing health experiences. You are not alone. Patient advocacy organizations are organizations that provide education and support for people with medical conditions and their loved ones. Below, please find more information on some organizations that might be helpful to you in your own lived experience. These resources are provided as a courtesy to patients. The links will take you to websites that are not owned or operated by Pfizer, Myovant Sciences, or their subsidiaries. Pfizer and Myovant Sciences do not control, endorse, or guarantee the content of third-party websites.
Our mission is to improve health literacy, thereby improving health outcomes.
To lead the effort to solve the most pressing health issues that affect Black women and girls in the U.S. Through investments in evidence-based strategies, we deliver bold new programs and advocate health-promoting policies.
The Center for Black Health & Equity facilitates programs and services that promote health equity for people of African descent. We envision a world where all people of African descent are able to obtain their optimal health outcomes.
The mission of Día de la Mujer Latina is to promote healthy behaviors within the underserved Latino community by providing a culturally and linguistically proficient education, facilitating early detection screening, culturally preventative care interventions, promoting wellness with resource information, Promotores/Community Health Workers training, and patient navigation for follow-up services.
The Endometriosis Association, an international nonprofit organization with members worldwide, focuses on three equally important areas of emphasis: First, we provide support to girls and women suffering from endometriosis—a chronic, painful hormonal and immunological disease—and because families are often impacted by the debilitating effects the disease has on their loved ones, we extend our support services to them as well. Second, we implement education programs and produce informative materials for those affected by the disease, for the public and for medical professionals. Third, we conduct and promote research in collaboration with leading medical researchers worldwide in order to find better treatments and ultimately a cure for this lifealtering, potentially disabling disease.
Endo Black, Inc. is a black-women led organization advocating for African American women and women of color living with endometriosis.
The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.
The Fibroid Foundation is the premier fibroids nonprofit, supporting and amplifying the voice of those with uterine fibroids. As a strong, supportive, and empowered community, we are elevating menstrual health and equity globally through our education, advocacy, research, and legislation efforts.
The Grange strengthens individuals, families, and communities through grassroots action, service, education, advocacy, and agriculture awareness.
HealthyWomen is on a mission to educate women ages 35 to 64 to make informed health decisions and to advocate for themselves in a healthcare setting.
PERIOD. is a global youth-fueled nonprofit that strives to eradicate period poverty and stigma through service, education, and advocacy. PERIOD. works to end period poverty in our lifetime through the distribution of menstrual products, creation of menstrual health curriculum and championing menstrual equity in law and policy.
Our mission through the Red Alert brand is to build awareness and compassion for the women who are suffering from uterine fibroids and related reproductive diseases by presenting thoughtful film production and health advocacy. Through Red Alert: The Fight Against Fibroids, we present the faces of fibroids from all over the world, along with cutting edge and historical research that will spark progressive change for millions of women everywhere. No more suffering in silence.
The Society for Women’s Health Research (SWHR) is a national nonprofit and thought leader dedicated to promoting research on biological sex differences in disease and improving women’s health through science, policy, and education. Founded in 1990 by a group of physicians, medical researchers, and health advocates, SWHR is making women’s health mainstream by addressing unmet needs and research gaps in women’s health. Thanks to SWHR’s efforts, women are now routinely included in most major medical research studies, and more scientists are considering sex as a biological variable in their research.
The mission of The White Dress Project (TWDP) is to raise global awareness about the uterine fibroid (UF) epidemic through education, research, community, and advocacy. We are dedicated to this mission, by advocating for research funding, highlighting reproductive health inequities, educating many on fibroids and their treatment options, and empowering a community who will advocate for their best health choices and no longer suffer in silence with this chronic illness.
References
1. Rose SL. Patient advocacy organizations: institutional conflicts of interest, trust, and trustworthiness. J Law Med Ethics. 2013;41(3):680-687. doi:10.1111/jlme.12078.
This site is intended only for U.S. residents. The information provided is for educational purposes only and is not intended to replace discussions with a healthcare provider.
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03/2023
