Access a community of support
Community support can be an important part of understanding and managing health experiences. You are not alone. are organizations that provide education and support for people with medical conditions and their loved ones. Below, please find more information on some organizations that might be helpful to you in your own lived experience. These resources are provided as a courtesy to patients. The links will take you to websites that are not owned or operated by Sumitomo Pharma, or their subsidiaries. Sumitomo Pharma does not control, endorse, or guarantee the content of third-party websites.
Patient Advocacy Organizations:
APIAHF influences policy, mobilizes communities, and strengthens programs and
organizations to improve the health of Asian Americans, Native Hawaiians, and Pacific Islanders.
Our mission is to improve health literacy, thereby improving health outcomes.
To lead the effort to solve the most pressing health issues that affect
Black women and girls in the U.S. Through investments in evidence-based strategies,
we deliver bold new programs and advocate health-promoting policies.
The Center for Black Health & Equity facilitates programs and services
that promote health equity for people of African descent. We envision a world where all
people of African descent are able to obtain their optimal health outcomes.
Mental Health America advances the mental health and well-being of all people
living in the U.S. through public education, research, advocacy and public policy, and direct service.
The mission of Día de la Mujer Latina is to promote healthy behaviors within
the underserved Latino community by providing a culturally and linguistically proficient education,
facilitating early detection screening, culturally preventative care interventions, promoting
wellness with resource information, Promotores/Community Health Workers training, and patient
navigation for follow-up services.
The Endometriosis Association, an international nonprofit organization with members
worldwide, focuses on three equally important areas of emphasis: First, we provide support to girls
and women suffering from endometriosis—a chronic, painful hormonal and immunological disease—and
because families are often impacted by the debilitating effects the disease has on their loved ones,
we extend our support services to them as well. Second, we implement education programs and produce
informative materials for those affected by the disease, for the public and for medical professionals.
Third, we conduct and promote research in collaboration with leading medical researchers worldwide
in order to find better treatments and ultimately a cure for this lifealtering, potentially disabling disease.
Endo Black, Inc. is a black-women led organization advocating for African
American women and women of color living with endometriosis.
The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition,
provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.
The Fibroid Foundation is the premier fibroids nonprofit, supporting
and amplifying the voice of those with uterine fibroids. As a
strong, supportive, and empowered community, we are elevating
menstrual health and equity globally through our education,
advocacy, research, and legislation efforts.
The Grange strengthens individuals, families, and communities
through grassroots action, service, education, advocacy, and
agriculture awareness.
HealthyWomen is on a mission to educate women ages 35 to 64 to make
informed health decisions and to advocate for themselves in a
healthcare setting.
The mission of the National Alliance on Mental Illness (NAMI) is to provide
advocacy, education, support, and public awareness so that all individuals and families
affected by mental illness can build better lives. NAMI began in 1979 with a small group
of families gathered around a kitchen table who wanted support for those in their lives
with mental illness. Today, NAMI has expanded to an alliance of over 600 local affiliates
and state organizations that work in local communities to raise awareness and provide
support and education to those in need.
To decrease uterine care and menstrual health disparities in underserved communities
through the eradication of societal stigmas and propagation of resources and scientifically based information.
PERIOD. is a global youth-fueled nonprofit that strives to eradicate period poverty and stigma through
service, education, and advocacy. PERIOD. works to end period poverty in our lifetime through the distribution
of menstrual products, creation of menstrual health curriculum and championing menstrual equity in law and policy.
Our mission through the Red Alert brand is to build awareness and
compassion for the women who are suffering from uterine fibroids and
related reproductive diseases by presenting thoughtful film
production and health advocacy. Through Red Alert: The Fight Against
Fibroids, we present the faces of fibroids from all over the world,
along with cutting edge and historical research that will spark
progressive change for millions of women everywhere. No more
suffering in silence.
The Society for Women’s Health Research (SWHR) is a national
nonprofit and thought leader dedicated to promoting research on
biological sex differences in disease and improving women’s health
through science, policy, and education. Founded in 1990 by a group
of physicians, medical researchers, and health advocates, SWHR is
making women’s health mainstream by addressing unmet needs and
research gaps in women’s health. Thanks to SWHR’s efforts, women are
now routinely included in most major medical research studies, and
more scientists are considering sex as a biological variable in
their research.
The mission of The White Dress Project (TWDP) is to raise global
awareness about the uterine fibroid (UF) epidemic through education,
research, community, and advocacy. We are dedicated to this mission,
by advocating for research funding, highlighting reproductive health
inequities, educating many on fibroids and their treatment options,
and empowering a community who will advocate for their best health
choices and no longer suffer in silence with this chronic illness.
Medical Organizations:
The mission of the American Academy of Family Physicians (AAFP) is simple:
Strengthen family physicians and the communities they care for. Built on decades of proven
representation, leadership, and advocacy, we support our members and the specialty with high
standards and dynamic opportunities.
The mission of the American Academy of Physician Associates (AAPA) is to lead the
profession and empower our members to advance their careers and enhance patient health.
GLMA is a national organization committed to ensuring health equity for lesbian, gay,
bisexual, transgender, and queer (LGBTQ+) communities and equality for LGBTQ+ health professionals
in their work and learning environments. To achieve this mission, GLMA utilizes the scientific
expertise of its diverse multidisciplinary membership to inform and drive advocacy, education, and research.
NPWH is the professional community for Women’s Health Nurse Practitioners and other advanced practice
registered nurses who provide women’s and gender-related healthcare. We set a standard of excellence by generating,
translating, and promoting the latest research and evidence-based clinical guidance, providing high-quality
continuing education, and advocating for patients, providers, and the WHNP profession. Our mission includes
protecting and promoting a woman and all individuals’ rights to make their own choices regarding their health
and wellbeing within the context of their lived experience and their personal, religious, cultural, and family beliefs.